News

The second Coronavirus call for…

European Conference on Rare Diseases & Orphan Products (ECRD) 14-15 May 2020

As you may already know,…

COVID-19 European Patient Registry

In the midst of the…

Global Survey on COVID-19 and PIDs

IPOPI is participating in the…

IPOPI coordinated a global statement on COVID-19

In light of the ongoing…

IPOPI, ESID and ISNS launch anEU level Call to Action on Newborn Screening for Rare Diseases

The EU level Call to…

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