4th Conference on European Reference Networks

Date

Wednesday 21 November 2018 from 09:00 to 17:45

Thursday 22 November 2018 from 08:45 to 17:00

Venue

  • Charlemagne Building – European Commission – Gasperi room
  • Rue de la Loi 170, 1000 Brussels – Belgium

Background 

24 ERNs were launched in March 2017 and are now operational. The ERNs’ system is a successful story. The complexity and ambition of the model implies a continuous and proactive analysis of the many challenges that ERNs are facing in the current deployment phase and those that will arise in the future.

The objectives of this year’s conference are:

  • To inform about the state of play of ERNs as a success of cross-border collaboration and new way of delivering healthcare.
  • To mark the momentum that ERNs are entering into a new life cycle: the deployment phase.
  • To present the main clinical and organisational outcomes of the networks and lessons learnt.
  • To identify the main challenges, potential improvements for the functioning and management of the networks and the way forward of the ERN system.

10 delegates from each ERN have been registered for this event and the network will share the outcome of these days with those who were unable to attend.

18th International Conference on Behçet’s Disease

18th International Conference on Behçet’s Disease, Rotterdam, the Netherlands.

The Erasmus University Medical Center in Rotterdam is a recognized Academic Center of Excellence on Behçet’s Disease in the Netherlands and participates in the European Reference Network in Behçet’s disease.

The international conferences on Behçet’s Disease are always a main event for physicians and researchers interested in Behçet’s disease. The contributors provide top oral presentations and poster sessions of accepted abstracts on a wide range of topics including basic immunology, genetics and clinical innovations. Meet-the-expert sessions will give young physicians an opportunity to share experiences with experts in the field.

http://behcet2018rotterdam.com/

Creating a Sustainable Environment for Holistic & Innovative Care for Rare Diseases & Complex Conditions

12-13th April 2018, Frambu, just outside of Oslo. The location was selected as this workshop is in fact being co-organised with another important project for the rare disease/highly specialised & complex care field: INNOVcare https://innovcare.eu/events/

Although not focused solely on ERNs, the ERNs will have a particular prominence and focus in this workshop, to explore how the Networks –as key players in the RD field- can support the activities initiated by previous and current Joint Actions and the INNOVcare project, and provide insight to the rich experiences of your disease communities